So ten days till surgery #2. How am I feeling you ask? (even if you didn’t ask I’m gonna tell you) Well at this very second….I feel good. I’m not nervous, I’m ready to go, I’m antsy, I’m getting bored at home…but I’m also really bummed that I’m esstentially starting to say goodbye to my year…I feel like it will be spend on the couch for the next 4 months. I had a good summer over all, I did enough things to where I feel like having an ostomy didn’t phase me and the things I did or wanted to do. I went swimming, I rode my motorcycle, I played with my niece, and so on. The only thing that I really found annoying with the ostomy, was exercising. When I would sweat the bag would get sticky and the wafer would also get sticky on the edges. Yea its kinda gross. Anyway, surgery, coming up…send care packages.

Why is this guy playing ping pong?

I met up with a friend of mine yesterday, who I haven’t seen in about a year. A great friend who I wish I saw more. And she asked to see my bag. Then after that I showed her my stoma. I’ve only had one other person ask to see it, and perhaps they don’t want to ask because its weird but I have to tell you. Its nice when people ask. Its like they aren’t freaked out by your poop disease, or that you wear your poop around like an accessory. I wish more people would ask, instead it just seems like the world is grossed out about it. I mean if I had a transparent bag I might not show, but its opague dude.  My family has not asked to see it. Granted sometimes it hangs out, or I dont care to cover it the way I do around others, but there is just something really comforting when someone asks to see it. Weird.

Also as an update. UC is a real tricky fucker. So…here I am all thinking I outsmarted UC by removing my colon…yea well I did not win this war. Apparently due to the fact that I still have some of my

Dont ask. I googled Flare.

rectal stump (I hate that there is no other term for this. Rectum is not on my list of words I like to say), I also still apparently have UC. Oh and get this….its being a bitch! Yea the like 3 inches of bum I have left is flaring?! WHAT. Seriously, UC, seriously? This is such crap. So basically its like the urgency to go again, even though there is no plumbing. Its the urgency and also the straining, except this time I could really strain forever because nothing is coming out of there. Also there is some weird discharge but its like what I’ve had this whole time after surgery just more of it.  So I notice this, of alltimes, at Camp. Awesome. So I talk to the GI doctor on site there and I give him the scoop, and like the rad dude that he was he wrote me a script on spot without any stupid exams. I also emailed my surgeons nurse to ask her opinion. Thank god for cell phones with email. Anyway, awesome GI, gave me a script and I’m all wahoo gonna fix this crap. And then I remember.

Butt foam

My mouth is not connected to my butt.

Bummer.

So he gives me a script for Cortifoam Rectal Foam (theres thats damn word again). Its a fantastic foam you just shoot on up your butt. I have been lucky this far in that I have not had to shoot anything up my butt, or have suppositories. The amount of instruments up the pooper has been minimal at best. I suppose I was due.

So I get this foam, and I look at it like, ugh. Double ugh. Then I decide to just make it my bitch, and get it over with.* Honestly it did make me feel a lot better. Less urgency, far less blood. The blood freaked me out again. Its been so long since I’ve seen the blood like that. Its never fun to see tons of your own blood, let alone when you know its coming out of your butt. So long story short here, you can still have a UC flare when you have an ileostomy depending on how much RECTAL stump you have left….and if you do get a flare, good news, you can treat it by shoving a giant syringe up your ass.  No seriously, on a brighter note, I know that I am technically flaring right now. But I don’t feel it. Its only flaring in the one small spot, but I’m not fatigued or drained or dizzy or feverish, or all that other bullshit I used to be when I had a stupid colon. I do have more frequency right now because of it, but its pretty awesome to know that if I still had a colon I would being sick as hell right now, and well, I’m not.

*I’m pretty sure due to the nature of the rectal foam instrument, I was made it’s bitch if you wanna get technical about it.

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